Friday, December 9, 2011

One Week Without Max

The last week has been draining, to say the least.

Yesterday, Max was laid to rest. He is at peace.

His family is at the beginning of the most difficult journey of their lives. There will be smiles and laughs as memories are shared. There will be tears and anger at the unfairness of it all. There will be good days where things seem almost normal again. There will be days a toy or drawing turns up and feels like a punch in the gut.

Those of us standing on the edges wish we could share the burden. Wish we could take the pain on ourselves for even a day so they don't have to bear it. But we can't. No words are adequate. No gesture is enough. We ask what they need, but we know the only thing they really want is something we can't give them.

So we do what we can. We love Max. We remember Max.

I knew that curly haired little boy before he was even born and his memory will have a piece of my heart forever.

If you would like to support Duchenne Muscular Dystrophy research in honor of Max, you can make a donation to Parent Project Muscular Dystrophy

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