Monday, September 26, 2011

Support Max and PPMD

Those of you who have been around a while have heard me talk about and seen pictures of our friend, Max.
Max is my dear friend Veronica's little boy and he has Duchenne Muscular Dystrophy. DMD affects 1 in every 3,500 live male births and results in progressive loss of muscle use. These boys typically lose the ability to walk between the ages of 10 and 14. By their late teens they will lose strength in their upper body and require help with breathing. Young men typically don't survive past their 20's or early 30's. But there is hope in the form of a fabulous organization called Parent Project Muscular Dystrophy. This organization provides a source of information and support for parents, but mainly they raise money to fund Duchenne research. There is some really interesting progress with various therapies, including something called exon skipping, which may allow some boys with DMD to retain muscle function longer.
Each year, PPMD holds a "Coach to Cure MD" event to raise money and awareness by partnering with college football teams. My friend Veronica and her family participate by holding their own local event. That event is TONIGHT, September 26 from 6pm-8pm at Ben & Jerry's. There will be TAMU football players there as celebrity scoopers and a portion of all ice cream sales will go to PPMD. In addition, there will be raffle tickets for sale and a silent auction. Some really great prizes are up for grabs and 100% of proceeds from the raffle and auction will go to PPMD. Last year over $1400 was raised, and I know we can do better this year!! Hop over to the facebook page Veronica has set up and let us know you'll be there!

If you aren't local and still want to participate, text "CURE" to 90999 to donate $5 to PPMD *standard text messaging rates apply*

No comments:


Related Posts Plugin for WordPress, Blogger...